The Adult Division

Where we are

Who we are

The Provincial Pediatric Hemophilia Program at BC Children's Hospital - provides comprehensive care and support to children and their families with inherited bleeding disorders such as Hemophilia A, B, von Willebrand's Disease, Rare Coagulation Factor Deficiencies and Inherited Platelet Disorders.

We are a core group of health care professionals consisting of Haematologists, Nurse Practitioner, Physiotherapist, Social Worker, Program Secretary working together to deliver state-of-the-art care to children with bleeding disorders. We enlist the help of other health care professionals such as dentists, orthopaedic surgeons, medical geneticists, pediatric surgeons and laboratory physicians to complement our care. We are key members of the Association of Hemophilia Clinic Directors of Canada (AHCDC), Canadian Association of Nurses in Hemophilia Care (CANHC), and Canadian Association of Physiotherapists in Hemophilia Care (CAPHC) to promote the latest innovations of clinical care, as well as the ability to offer our patients the opportunity to enrol in clinical studies.

We serve the province of BC and Yukon, although some communities in the eastern portion of the province utilize Calgary or Edmonton due to proximity and ease of access.

Where we are

What we provide

• «  Annual/ biannual reviews on all patients with inherited bleeding disorders
• «  Monitoring, training and support for all patients enrolled on the Home Therapy Program
• «  Community and outreach education
• «  Supervise and account for coagulation factor concentrate distribution in British Columbia for all patients on home treatment through the use of CHARMS database system
• «  Specialized medical, nursing and physiotherapy support for children in BC with inherited bleeding disorders
• «  Ongoing teaching and treatment to prevent complications of bleeding

What we expect from our patients

• «  Families to be a partner in their child's health care
• «  Patients and families to maintain regular contact and appointment with the hemophilia clinic
• «  Patients and families to keep accurate treatment records and submit these to the clinic at agreed intervals
• «  Patients and families to be educated and understand their bleeding disorders, potential complications, treatment and care

Other important info

• «  Treatment records (infusion records) can be submitted by mail, fax or email to the hemophilia clinic. Monthly submissions are expected as per standard national practices.
• «  Factor requests for homecare use may take up to three business days for processing. Patients should monitor their home inventory (and check before holidays) that they have adequate supplies.
• «  Families on homecare are also responsible for ordering their own supplies (syringes, needles) through the product distribution centre. Please call the hemophilia clinic for their contact number if required.
• «  For emergency concerns after hours or on the weekend please contact the Haematologist on call at (604) 875-2161